Its not a Frosty mind you, but he claims Argentina cured him lol. etc. The focus of MY COOKBOOK is providing alternatives for all of us, for each and every food intolerance. Hi, Meghan, sorry to ask another question. The supplements on this list attempt to provide the molecules that make up the bladder lining, giving the body the 'building blocks' to repair the bladder lining. If thats the case, it'll be great. Official Title: Efficacy of Peppermint Oil in a Randomized, Single-Blind, Placebo Controlled Trial in Women With Interstitial Cystitis/Bladder Pain Syndrome. YOU Are the reason I kept going and never gave up the hope that I could heal to. So much to learn! So yes monolaurin (you can order off amazon), raw organic coconut oil (i spoonful this in me daily), i drink the water out of a coconut, eat the flesh of the coconut. Blessings in your healing process! For example, can you not tolerate any alcohol-based tinctures? A fruit intolerance is separate and different (its a genetic inability to digest an entire food group) from a salicylate sensitivity (where some fruits rank low and some fruits rank high). Dr. Zeffs website was incredibly helpful too! Andwhen it diddid you continue to stay on this diet or were you able to reach out to other options? I know that some of you have been waiting for me to write this so that you might learn something and get well! Hi Teryl, I see that you contacted me via email. I am so glad I found your website. Be excessive, not sparing with yourself. Because IC has such a wide range of symptoms and severity, most experts think it might be several diseases. Im happy youre seeing improvement! After two more weeks, we abandoned the experiment, inspiring as your results are. Did you start them right away or add them in at different stages? This is such a painful disorder, any info is so helpful! If coconut oil doesn't work for you check it out (unless you already have). Super duper bummer. My kids are tall and strong, athletic etc. I really enjoyed your story and trying to help people. Blessings as you figure out the right balance for your family!! There are a few mysteries that remain. <3 Well, it gets a bit philosophical and personal, doesn't it? Look forward to hearing from you. You know what happened, right? Now I have lived through enough flares, and twinges to know that just as they came, they will go. So while, yes, that Intro. Dear Megan, thank you for your blog and your committment. When you did GAPS originally before going back to intro, when did you start to see improvements with your IC? But if you ask a naturopathic physician, they will not pause before saying that yes, IC is an extension of leaky gut, all the way down into the bladder and the urethra. They say to stay away from probiotics for a few months and then add them in later but thats controversy for now As far as fruit its might be the pectin your reacting to and not all fruit has pectin.. You have to eat fruit alone on an empty stomach first thing in the morning wait an hour before eating breakfast or coffee. Hes a sensitive guy of 8 anyway, and Ive been so overwhelmed because even after taking all the fructose and trying to do the FODMAP foods, hes worse than ever, but at least not throwing up. He doesnt need to do the food evaluation because he is thriving. Depending on the type of flare, heat may be more effective, or cold, or even a combination of both. I know its really hard in the beginning. Im so glad youll be starting the GAPS diet. The condition is a part of a spectrum of diseases known as painful bladder syndrome. I have suffered from bladder issues for over 20 years thinking I was getting reoccurring UTIs but it never made sense. Thanks for sharing your story. . Okay Angela! But if his health wasnt good, if he lived in a place with little sun and he did have the evaluation, I dont think that dairy would be his intolerance. Weband light: extra-virgin olive oil, pumpkin seed oil, flaxseed oil and walnut oil. NO eczema, nowell you knowunpleasant belly symptoms so I thought healing was possible and that the enzymes he was lacking he lacks no more and reintroduction was fine. Next, I have not cured myself but have my go to plan that helps me cope and, I believe, recover. Sorry so many questions. I hope that helps! Im going to a naturopath Wednesday week for a food intolerance blood test. They are the routes that allowed me to get well, also working with my doctor: a wellness diet, removing fruit and an elimination diet, as well as getting your food intolerance evaluation done. Dinner: pork chops with mashed potatoes and green beans. More than once I asked the pharmacist, politely, but completely incredulous, Why do they cost this much?. If so, for your CI or just because they are bad for your health? In remissions I eat whatever I want and it doesnt seem to bother my ic. She said she felt horrible about it now; but that they were on the forefront of the research being done and at the time, they felt it was their only next step. Again, thank you for writing this. Ive been trying to heal my bacterial overgrowth and have not been able to tolerate probiotics. Thank you for taking time and sharing your story with us. I dont push myself to drink an excessive amount of water, unless my bladder is very uncomfortable and I feel I need to flush it out. Thanks again and glad you are well! I did find one link that didnt work, and I updated that information, which is for NAC. Hi Arielle, I cant remember the details except that the IC symptoms cleared quickly when I went on Intro the second time. No other syptoms, UTI tested negative. Ferments are terrible for your bladder (ferments are the foundation of the GAPS diet) and they trigger Mast Cell Degranulation which causes a whole host of problems including bladder issues. I just started working with a new integrative doctor. One of us had four solid weeks of symptom abatement; this same person has a pattern for their entire life of having symptoms abate for three weeks, whenever we try ANY new protocol. So I did a food allergy test and tested positively for dairy, gluten and other grains, some fruits (cherries, rasperry), paprika and garlic. I am interested in the one you took it says its the 900mg 1 capsule daily. Thank you. I believe strongly that we can heal ourselves. In addition, we tried no pork as well, since were already doing a gut-healing low-vitamin A diet. I worry about getting enough calories to keep the weight on. Hi Elizabeth! He spend 2 hours trying to find the root cause of my IC and he was able to figure it out! I sent a message, but have not heard back. Its called a Food Intolerance Evaluation: http://www.songofhealth.com/carrollhistory.html. Eat more. I wanted to hear your input about the GAPS dietabout how long did it take for the introductory stage to heal you? , It is an understatement to say, I am SO happy for you, Kimberly!! Ive dealt with IC for a decade and was told I had leaky gut around 30+ years ago. Certain dietary changes, like knowing ones food intolerance, and moves toward healing the gut like removing grains, sugar, fruit and lectins seem to be great places to start even without a certain diagnosis of IC, in my opinion. In my mind the goal is to create a healing diet that you enjoy so the push is not to get off. Most need a grain-free, sugar-free diet as well, in my opinion. Hi I am Jennifer: I came across this website in Dec. 2017. Thanks megan! I will need to figure out what is best for me but would love to heal myself just as you have. So yes monolaurin (you can order off amazon), raw organic coconut oil (i spoonful this in me daily), i drink the water out of a coconut, eat the flesh of the coconut. The GAPS Diet is reputed to help heal asthma, food allergies, dyslexia, leaky gut, gut dysbiosis, (we had all these among us), as well as autism and ADD (which we didnt have). Yes, I dont plan to eat fruit again. Your husbands concern is a good one. My change was faster because Id already been on a gut healing diet for years. Hi Megan, thanks so much for this blog. Talk out loud to yourself.. I will get better . LOL, Im happy with that nickname, Linda! No fruit but maybe some melon, tomato, and avocado. It looks like I have IC. Ive visited my urologist a few times, went for second opinions elsewhere, and have had COUNTLESS visits with my primary care doctor about my issues. The evaluation and brief consult costs $175. Coffee (caffeinated and decaffeinated), tea (caffeinated and decaffeinated), soda, alcohol, citrus juices, and cranberry juice. It must be IC even though she hasnt told me yet. The consult allows him to share more about the food intolerance concept with you so you understand the results. i have postcoital cystitis and e.coli. Just popping in to say while coconut oil is safe physiologically, (like other oils) it is not safe for use with condoms, so if that's part of your birth control method then oil is a no go. How long did you end up being on GAPS intro? However, it should be noted that this isnt the case for everyone. Those with fruit as their food intolerance can not have coconut anything. I was actually just about to eat my first batch of homemade yogurt here in the next day or two, but now you have me curious about why you dont eat yogurt. Also, thank you for your time doing this. Youll need to reach out to either Dr. Zeff or another practitioner whos been trained. This would be something to ask your ND or functional doctor about. I really appreciate you putting this all out there it has given me more hope. Thank you for sharing your experience! So, the GAPS principles are still playing out in my life and they are still supporting my recovery from IC. BTW I have taken very good Vitamin C 1000mg. Years? This is a very wonderful post. Make a few of these then put them in a plastic container and freeze them. Aloe Vera for Interstitial Cystitis. Its a precursor to glutathione. 2 Does your doctor still offer the food intolerance test? I never thought I would be reading about IC again after being symtom free for 18 years, maybe 1x a year I would have a very mild flare that would last about 2 days and be totally gone. It is possible I could have my food intolerance in the future, but even if my IC symptoms didnt return I wouldnt, knowing that my body doesnt digest that food group well. . I am now 16 months into IC, or some type of similar bladder issue. Why is my child so sick? I have looked into it, yes. So that is my question, how do I get the vitamins I need if I cant eat fruits nor vitamins? They were born with less than awesome gut flora because their moms had less than perfect gut flora. But I am symptom-free when I stay away from fruit. On top I am worried that by all these restrictions I dont have a balanced diet which could lead to further problems.. What would you recommend me to do? Well, weve come to the point in the post where I need to tie together the pieces for you, tell you where Ive been and how I got to where I am~ symptom-free and so thankful I could fly! Sometimes the feeling that I need to go passes other times it doesnt and if it doesnt then Ill go to the bathroom. The book, Fast Tract Digestion: IBS offers some nice quantitative guidelines for SIBO so you can keep in more foods you might want to review this book it is a game changer for managing SIBO. Really informative post, I have never heard of this before. I had to even ask for the test as the doctor kept thinking it was tummy migraines or anxiety. If you feel well, excellent! Ive been on the gaps intro diet for a week now. On the IC Network there are multiple reports of remission using D-Mannose. The problem was much worse before I started my period each month and I had the same symptoms you had with urethra pain. Trying to heal you my change was faster because Id already been on gut... Diet as well, in my mind the goal is to create healing..., Linda flaxseed oil and walnut oil caffeinated and decaffeinated ), tea ( caffeinated and decaffeinated ),,. Dealt with IC for a decade and was told I had to even for! Than once I asked the pharmacist, politely, but he claims Argentina cured him.! 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